Monday, May 21, 2007

[MLM Survivors Club] Thank you PW and everyone else for their responses.

PW,
I really appreciate the time you and the others take to reply to my emails. I watch all the post that go on MLM
Survivors, but only make a comment about once or twice a year. When I write I usually do so at length and take hours
composing it and reorganizing my thoughts to get my points across and hopefully do it with tact. When I see a
particular post that I just have to respond to, I usually start writing a "knee-jerk" emotional response, but after
rereading it, go back and edit it down to something a bit more rational, factual and to the point. (Yes, believe it or
not, my previous post was edited down. :) )
When I write I usually get several very good responses, like yours and the others I have seen in the last 24 hours.
In hindsight, when I requested info on the Limu company, I should have specified more that I was looking for info on the
Limu Drink itself. I have heard a lot about things made from seaweed (like Limu)over the last 20 years or so, and this
looked like something that might be worth checking in to. If I find a good idea, I am also always looking for cheaper
ways to get the same result. As I said in my previous email, the Xango Juice, for what ever good qualities it may have,
is just Mangostene Juice, and is available at Sam's Club for less than 25% of the price charged for it under the name
Xango. It turned out to be fruit Juice with much higher carbohydrate counts than stated on the bottle, and after we
tried it my wife felt worse and I had not grown all my hair back. :)
If you are wondering, my wife's illnesses include the following:

Type 1 Insulin Dependant "Brittle" Diabetes
Glaucoma
Cronic Uticaria (Severe, very itchy hives or whelps that, without warning suddenly break out and cover the entire body
with minutes.)
Thyroid problems
...and a few others that have not been diagnosed

The Diabetes is the biggest problem because it is the "Brittle" or "uncontrollable" version. At least we have not
found a way to control it yet. She can have blood sugars of 100 at 8 AM, then they drop to 45 at 8:30 AM. She eats
only something worth about 40 points on the blood sugar scale and an hour later she is at 300. She can have a blood
sugar of 200 on a Monday at noon, take a dose of insulin and check her sugars an hour later to find that are at 250. On
Tuesday at noon she can have a blood sugar of 200 and take the same size dose of insulin and 30 minutes later be
sweating profusely and passing out with blood sugars of 35. Food effects her the same way. I even got her an Insulin
Pump and it is still one big roller coaster ride.
Whether she is healed by some doctor with a miracle cure, a bottle of snake oil or by a blinding light from heaven,
we will take it any way it comes. If it never comes we will deal with too and will never lose or faith in God to get us
through this life. I will also never sit around waiting for the cure to come and will always be searching diligently
for every possible cure.
In closing, the diabetes does make my wife suffer and it is tough at times, but it never affects the love God gave
us for each other. We will have a very happy 30 th anniversary because God blessed me with the most wonderful wife in
the world.
PW, Thank you again for responding to my email. I love to hear other's ideas and responses about what I write, and
who knows, maybe some day I'll be telling everyone how my wife was healed! Thanks again and God bless.
James Galyon

----- Original Message -----
From: "paine_wwweb_r" <paine_wwweb_r@comcast.net>
To: <mlmsurvivorsclub@yahoogroups.com>
Sent: Monday, May 21, 2007 12:03 PM
Subject: Re: [MLM Survivors Club] Hi/in re to limu and tianshi whether mlm or not

> James -
>
> I am going to respond to parts of your post in pieces. That is not
> intended to be argumentative, just to offer a quick response that,
> maybe , could be helpful. My post is long enough as it is:
>
>
>
> > My name is James and I had a very
> > good reason for asking my question.
>
> There is no way for us to know your intentions before you state them,
> unless you have been here and active for a while. You have now made
> your intentions known, but you cannot fault anyone for being unable to
> read your mind. As you accurately pointed out, there have been
> pro-MLMers who thought they could come into this group asking "What do
> you know about such-and-such-MLM?" only to find later that they were
> trolling the group for prospects. It has happened many times, and
> continues to happen. If our members seem overly-cautious, you should
> understand why.
>
>
>
> > I had already looked online about
> > Limu, but found only the MLM sites
> > with everyone praising "Original Limu".
>
>
> Did you try adding words like "complaint" or "scam" to your search?
> If you enter just the name of the product, that's all your search will
> yield.
>
> But more than that, if all you found were MLM sites that praised the
> product, wouldn't that, in itself, be a red flag to you? MLMs have a
> vested interest in promoting the usefulness of their products and
> heightening the credibility of their testimonials. Even if one MLM
> says their products are better than those of another MLM, they will
> seldom discount the validity of the other MLM's testimonials. At
> worst, they'll say, "Well, it worked for them, but it probably won't
> work for everyone."
>
> You have already surmised that you cannot get valid information on a
> product from the MLMs that manufacture and sell them.
>
> But my main point here is that IF you cannot get valid information on
> a particular product from the MLM and there is little or no
> information anywhere else, WHY ON EARTH would you continue to pursue
> it? Don't you think that a valid curative product would be WORTH A
> MINT on the open market? The OPEN market?
>
> I'll get into this a little more below.
>
>
>
> > First was the fact that someone else claiming to be a Christian
> > had invited me, so I trusted them.
>
> You probably won't make that mistake again. What a person claims to
> be, even if that claim has to do with faith, doesn't mean they are
> incapable of promoting a scam, even unwittingly.
>
>
>
> > The second reason was that I was
> > desperate to fine income I could
> > make working from home to pay my
> > wife's huge medical bills.
>
> You are not alone in this. However, desperation causes mistakes. A
> methodical search is obviously the better way to go. It is plain that
> you know that now, but there is still a bit of desperation in your
> post, I while I do not blame you for your feelings, you seem to want
> to dismiss validity for miracles. If I was in your shoes, I would be
> wishing for a miracle, too. But I wouldn't throw everything else away
> in search of one.
>
>
>
> > The third was to help others in
> > my situation.
>
> This is a common motivation for getting started in MLM. Most people
> have some level of altruism, whether it's for everyone or just your
> own family. When we joined Amway, that was one of the pitches they
> used to hook us.
>
>
>
> > Since 1990 I have been praying for my
> > wife's healing and looking for a place
> > to find something to help her. The
> > doctors do nothing except take our
> > money and write prescriptions, mostly
> > for junk that does not help.
>
> From what I have gleaned from my wife (a physician), most medicines do
> not cure. The best they can do is reduce symptoms. If your doctors
> are claiming to be "curing" your wife's condition and have not fully
> described her prognosis, I'd be searching for different doctors.
>
> Let me be completely clear: There ARE GOOD doctors. The good ones
> are knowledgeable about current treatments and honest about what can
> actually be done for a person's situation.
>
> I don't know how much you've done in 17 years with regard to checking
> the veracity of your doctor's statements or finding multiple opinions.
> But there are too many good doctors and researchers out there for a
> true "miracle cure" to fly under the radar and end up being sold
> solely through MLM or direct marketing.
>
> Again, in the interest of being clear: There are doctors who only got
> into medicine for the lifestyle, and there are doctors who have gotten
> lazy over the years and are not as "on the ball" as your wife's
> situation might require. But that does not condemn all doctors, and
> it doesn't indicate a conspiracy to hide valid remedies.
>
> Finally...
>
> There may be no miracle cure for your wife. That is an extremely hard
> reality. I know nothing of your wife's condition and have no business
> knowing. But I do know that the combination of a serious, chronic
> medical condition coupled with desperation often results in an
> undesired outcome.
>
>
>
> > If you had watched you spouse suffer
> > for the last 17 years as I have, I
> > am sure you would be asking everyone
> > every question you could to help them.
>
> And I would be careful to explain my motivations for asking.
>
>
>
> > When I was 8 my father got MS and
> > suffered terribly and died by the
> > time I was 12. I watched my mom do
> > everything possible for 4 years to
> > find a cure or something to help.
>
> As you know, there is no cure for MS. All doctors can do is help
> alleviate the symptoms and provide the means for ongoing therapy. In
> the end, that is all your mother could do.
>
> There is no miracle product, no pill to pop, that will make pain and
> suffering disappear. And while our society is big on blaming doctors
> and insurance companies and the like (or just anybody, sometimes, if
> it will serve a lawsuit), the truth is that there IS no one to blame.
> These things simply are as they are. (And God knows there's plenty
> of criticism to be placed on the medical community for things over
> which they CAN exert some control!)
>
> At the risk of lecturing, I offer this:
>
> You have stated your adherence to the Christian faith. Christian or
> not, at some point, you must turn within to find your own answers and
> your own strength. The outcome may not be the one you want. But by
> finding your strength, you will find something in this experience that
> is valuable. You can accept the outcome, no matter what it is, and
> help your wife as she copes with her malady. You cannot so attach
> yourself to a particular result that you ruin whatever good may be
> left in your life, and your wife's life.
>
> Continue your search. Now that you have explained what is going on
> for us, hopefully someone will come up with some good information for
> you about Limu. I suspect that it will not be what you seek, if only
> because it appears to be marketed through MLM.
>
>
>
> > On June 10, 2007 we will celebrate
> > our 30th wedding anniversary and I
> > hope to celebrate 30+ more years
> > with her and will do anything I can,
> > short of offending God, to help her.
>
> I imagine that "happy" anniversaries are difficult to come by for you.
> In any case, you have my prayers and a wish that your anniversaries
> will be, if not happy, then at least blessed.
>
>
> All the best to you.
>
>
> PW
>
>
>
>
> Yahoo! Groups Links
>
>
>
>

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